We got the best Father's Day present today: We got to come home from the hospital! Praise the LORD!!! We got the go-ahead, and as fast as we could, we loaded our stuff up and hit the road! The entire way home, Bailee kept saying, "I had to get out of there!" and we couldn't have agreed more! It was a long week, but we're so happy to have our sweet girl home! Thanks for all the thoughts and prayers...they kept us going this week! We love you all!
Love,
Patrick, Brooke, and Bailee
Sunday, June 21, 2009
Friday, June 19, 2009
Bailee Update
Just wanted to give you guys a little update:
Bailee's surgery went well on Monday. She came through with flying colors, and aside from a little nausea from the anesthesia, she was doing great.
Tuesday she seemed to be even better...playing, laughing, singing. We thought for sure that she would be going home on Wednesday. All we were waiting on was them to remove the catheter, but they were waiting on that because her output was still discolored.
Our hopes for going home were dashed on Wednesday. She was very lethargic and didn't have an appetite at all. At most, she ate a handful of grapes and a small handful of Fruit Loops. She laid around watching movies, but other than that didn't do too much. She spiked a fever during the night on Wednesday, but we took care of that (or so we thought) with a little Lortab.
Thursday--the WORST day of our lives--Bailee's heart rate began to climb rapidly. When they became concerned, it had reached 181 beats per minute. They then hooked her up to monitors, and we continued to watch it grow in excess of 195-200. Then the barage of testing began: ultrasounds, X-rays, and lots of bloodwork. She has had a cough and some congestion, so they were concerned she might have pneumonia, and the x-ray revealed a shadow" on one lung, but they still don't think this is it. We have now determined (or are close to determining--still waiting on one test result) that she has a kidney infection. They have started her on a broad spectrum antibiotic to cover everything (including pneumonia). Once she got a dose of that antibiotic she immediately began to feel better.
Friday has been a better day. She may require a blood transfusion because of the amount of blood that she has lost, and we'll know for sure after lunch today when they draw more blood. At this point, we don't know when we'll be home, and we could still use everyone's prayers.
We appreciate all your thoughts and prayers and those who have called, emailed, or come by to visit. I am so fortuntate to have such an amazing and supportive work family, and in times like this it is a great source of comfort. We truly serve an amazing God and we know that He is going to take care of us!
Bailee's surgery went well on Monday. She came through with flying colors, and aside from a little nausea from the anesthesia, she was doing great.
Tuesday she seemed to be even better...playing, laughing, singing. We thought for sure that she would be going home on Wednesday. All we were waiting on was them to remove the catheter, but they were waiting on that because her output was still discolored.
Our hopes for going home were dashed on Wednesday. She was very lethargic and didn't have an appetite at all. At most, she ate a handful of grapes and a small handful of Fruit Loops. She laid around watching movies, but other than that didn't do too much. She spiked a fever during the night on Wednesday, but we took care of that (or so we thought) with a little Lortab.
Thursday--the WORST day of our lives--Bailee's heart rate began to climb rapidly. When they became concerned, it had reached 181 beats per minute. They then hooked her up to monitors, and we continued to watch it grow in excess of 195-200. Then the barage of testing began: ultrasounds, X-rays, and lots of bloodwork. She has had a cough and some congestion, so they were concerned she might have pneumonia, and the x-ray revealed a shadow" on one lung, but they still don't think this is it. We have now determined (or are close to determining--still waiting on one test result) that she has a kidney infection. They have started her on a broad spectrum antibiotic to cover everything (including pneumonia). Once she got a dose of that antibiotic she immediately began to feel better.
Friday has been a better day. She may require a blood transfusion because of the amount of blood that she has lost, and we'll know for sure after lunch today when they draw more blood. At this point, we don't know when we'll be home, and we could still use everyone's prayers.
We appreciate all your thoughts and prayers and those who have called, emailed, or come by to visit. I am so fortuntate to have such an amazing and supportive work family, and in times like this it is a great source of comfort. We truly serve an amazing God and we know that He is going to take care of us!
Wednesday, June 17, 2009
Bailee Update-Wednesday AM
Bailee seemed to be doing very well yesterday, and we were hopeful that we'd be going home today. She got a little restless, so we took her for a walk down to the playroom twice, which seemed to cheer her up quite a bit. We had lots of visitors yesterday: Mrs. Self (my principal) and her family, Barbara Koch (a friend from school), Karen Bayne and some of her teachers from Whitefield, Laura (from our Sunday School class), and the Brackens. Bailee loved seeing her best buddy Marla...they colored, tickled, and laughed together!
Unfortunately, last night wasn't as good as the night before. She got sick again around 11:00 and then woke in a lot of pain around 3:15. We slept until about 7:45 this morning, and she's just been laying around most of the morning since then. She doesn't seem to be her perky self, so the doctors and nurses are keeping a close watch on her and preparing us for another night here. We certainly don't want to go home until she's good and ready! They've done some bloodwork and might send us for an ultrasound later today if things don't pick up. 
We're not out of the woods just yet, so we could still use all the prayers we can get!Tuesday, June 16, 2009
Bailee Update-Tuesday PM
We made it through the night, and Bailee's doing pretty well. She and I slept on the bed together, while Patrick slept on the fold-out bed. Considering the check-ins every two hours, we did okay. We woke early this morning, and Bailee has been resting comfortably. She has even got to put on her gown and Crocs, so that has brightened her spirits. The doctor's assistant came by and told us they would be taking out her catheter later today and that more than likely we'd be going home tomorrow sometime. We even got the go-ahead to get her up and walk a little, but as long as she's content in the bed, that's where we'll stay.
We are getting a little antsy, but the computer and movies keep us occupied. Thanks to everyone who has called or stopped by to see us. We appreciate all your thoughts and prayers! We'll keep everyone posted...Thanks again!
Love,
Patrick, Brooke, and Bailee
Monday, June 15, 2009
Bailee Update: Monday PM
Well, we are resting now...She's pretty tired from all the medications and goings-on of today. After her three-hour surgery, we got to go back to the recovery room with her, where she was extremely groggy and just wanted her Mommy and Daddy. 
They've now moved us to a room (5601) on the Pediatric Cancer floor because of over-crowding on the other floors. Once she woke up, she was perky and actually mustered a smile or two. We were excited that she had kept graham crackers and apple juice down for about 2 hours, but she later got sick, and so they've now given her something to suppress her nausea, which has made her sleepy again. 
They've now moved us to a room (5601) on the Pediatric Cancer floor because of over-crowding on the other floors. Once she woke up, she was perky and actually mustered a smile or two. We were excited that she had kept graham crackers and apple juice down for about 2 hours, but she later got sick, and so they've now given her something to suppress her nausea, which has made her sleepy again. We are very fortunate to have amazing nurses and doctors taking care of us! And we are so lucky to have wonderful friends and family supporting us! Please continue to keep us in your thoughts and prayers as we still have a long road ahead of us....We will keep you posted as we continue to make progress.
Love,
Patrick, Brooke, and Bailee
Bailee Update
Well, we're in the surgical waiting area now...she's been in surgery for about an hour and a half at this point. I'm trying to keep my mind occupied and distracted, so the computer is helpful. We should be hearing from the nurse again shortly, but when she last called, Bailee was doing well.
She was a little apprehensive when she had to put on the hospital gown and socks, but she relaxed a little when Patrick and I donned ours. We were even able to get a little smile out of her. When they were ready for her, I rode on the bed with her to the door of the operating room where we had to leave her with the doctors and the nurses.
We've already had our first visitors: Pastor Tony came to see her, and both sets of grandparents are here with us now. We know she's in good hands, and we'll keep updating as information comes available to us. Thanks again for all of your thoughts and prayers!
Love,
Patrick and Brooke
She was a little apprehensive when she had to put on the hospital gown and socks, but she relaxed a little when Patrick and I donned ours. We were even able to get a little smile out of her. When they were ready for her, I rode on the bed with her to the door of the operating room where we had to leave her with the doctors and the nurses.
We've already had our first visitors: Pastor Tony came to see her, and both sets of grandparents are here with us now. We know she's in good hands, and we'll keep updating as information comes available to us. Thanks again for all of your thoughts and prayers!Love,
Patrick and Brooke
Saturday, June 13, 2009
Say a Little Prayer
Bailee is having her surgery on Monday, June 15th, so in the coming days, we would appreciate your prayers.
In case you don't know, when Bailee was 10 1/2 months old, she had a Urinary Tract Infection. We then went through a battery of tests and painful catheterizations. These revealed that she has some bladder defects that would eventually require surgery. Upon the pediatric urologist's suggestion, we opted to take daily preventive medication until she was between 2 and 3, at which point the surgery would be completed. So, now we are there, and we will be admitted to the Children's Hospital in Greenville on Monday at 6:30 am.
Trying to explain this to a 2 1/2 year old is difficult, but we've explained to her that Dr. Teague is going to kiss her tummy and make it all better. She has grown quite used to taking her nightly medicine, and even reminds us of it if we forget.
We should be there a couple of nights, but while she is recovering, I will keep you posted. In the mean time, please just keep us in your thoughts and prayers! Thanks!
In case you don't know, when Bailee was 10 1/2 months old, she had a Urinary Tract Infection. We then went through a battery of tests and painful catheterizations. These revealed that she has some bladder defects that would eventually require surgery. Upon the pediatric urologist's suggestion, we opted to take daily preventive medication until she was between 2 and 3, at which point the surgery would be completed. So, now we are there, and we will be admitted to the Children's Hospital in Greenville on Monday at 6:30 am.
Trying to explain this to a 2 1/2 year old is difficult, but we've explained to her that Dr. Teague is going to kiss her tummy and make it all better. She has grown quite used to taking her nightly medicine, and even reminds us of it if we forget.
We should be there a couple of nights, but while she is recovering, I will keep you posted. In the mean time, please just keep us in your thoughts and prayers! Thanks!
The Big 3-0
I have officially become an OLD woman. Or so my dear, sweet wonderful husband likes to tell me! Unfortunately for him, he will always be older!
My Girlies
Family Photo
Mommy & Bailee
Mason, MacKenzie, and Bailee
My Girlies
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